The ACA extended health care insurance to a broad range of people – about 20 million. While the little-known provision about children with cancer may not be as broad in scope, the effect is deep.
Until the ACA was enacted 10 years ago, there were two care choices for kids with cancer whose parents were told they had less than six months to live: They could continue treatment for their little ones, or they could decide to cease treatment and enter hospice. In most cases, when a patient enters hospice care, insurers no longer will pay for treatment. Instead, the care becomes comfort care. The decision to enter hospice care is always one of the toughest decisions patients and their families ever make. It is impossible to know the heartbreak that parents of children with cancer must make in choosing between hospice care or treatment.